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APS Support Groups & Chat


Systemic APS Support Group

This group is intended as a support group and a research resource for medical professionals, patients and families who wish to learn more about a little known lethal, yet treatable, blood disorder that causes hypercoagulation. This disease is known under many names and combinations of initials (APS, APLS, Catastrophic APS, Primary and secondary APS, Sero-Negative APS, Sticky Blood, as one of the connective tissue diseases and also by the non-descriptive name of Hughes Syndrome after one of the group of doctors who first described the disease). The APSFA does not endorse nor is affiliated with this group, we are just sharing it with you as a courtesy. The only support group that APSFA is affiliated with is APS Friends & Support Forum. It is worth noting that not all of the information presented comes from healthcare professionals. The APSFA does not have any control over the content of the this website and cannot confirm that all information provided by it is accurate.

Lupus Patients Understanding and Support

Support Group and Forum. The APSFA does not endorse nor is affiliated with this group, we are just sharing it with you as a courtesy. The only support group that APSFA is affiliated with is APS Friends & Support Forum. It is worth noting that not all of the information presented comes from healthcare professionals. The APSFA does not have any control over the content of the this website and cannot confirm that all information provided by it is accurate.

Blood Clot Survivors DVT/PE/APS

A group of persons who have survived blood clots, strokes, PE's, or who have APS. The APSFA does not endorse nor is affiliated with this group, we are just sharing it with you as a courtesy. The only support group that APSFA is affiliated with is APS Friends & Support Forum. It is worth noting that not all of the information presented comes from healthcare professionals. The APSFA does not have any control over the content of the this website and cannot confirm that all information provided by it is accurate.

APS or Antiphospholipid Antibody Syndrome

Small and not so active, but free to join. Has alot of other forums as well. The APSFA does not endorse nor is affiliated with this group, we are just sharing it with you as a courtesy. The only support group that APSFA is affiliated with is APS Friends & Support Forum. It is worth noting that not all of the information presented comes from healthcare professionals. The APSFA does not have any control over the content of the this website and cannot confirm that all information provided by it is accurate.

eHealth Forum

Make sure you read the rules of this forum! The slightest step across their lines you are banned. The APSFA does not endorse nor is affiliated with this group, we are just sharing it with you as a courtesy. The only support group that APSFA is affiliated with is APS Friends & Support Forum. It is worth noting that not all of the information presented comes from healthcare professionals. The APSFA does not have any control over the content of the this website and cannot confirm that all information provided by it is accurate.

Antiphospholipid Syndrome Online Support Group

A community of patients, family members and friends dedicated to dealing with Antiphospholipid Syndrome, together. The APSFA does not endorse nor is affiliated with this group, we are just sharing it with you as a courtesy. The only support group that APSFA is affiliated with is APS Friends & Support Forum. It is worth noting that not all of the information presented comes from healthcare professionals. The APSFA does not have any control over the content of the this website and cannot confirm that all information provided by it is accurate.

APS Message Board at Medicine.net

Another small one, I believe free to join. The APSFA does not endorse nor is affiliated with this group, we are just sharing it with you as a courtesy. The only support group that APSFA is affiliated with is APS Friends & Support Forum. It is worth noting that not all of the information presented comes from healthcare professionals. The APSFA does not have any control over the content of the this website and cannot confirm that all information provided by it is accurate.

Pulmonary Embolism

Suffering an episode of DVT or Pulmonary Embolism is a life threatening/changing event. Doctors are vague in sharing information about your prognosis or even your treatment. This group will serve as a place where people can compare their diagnosis and treatments and perhaps help each other in this scary journey!! The APSFA does not endorse nor is affiliated with this group, we are just sharing it with you as a courtesy. The only support group that APSFA is affiliated with is APS Friends & Support Forum. It is worth noting that not all of the information presented comes from healthcare professionals. The APSFA does not have any control over the content of the this website and cannot confirm that all information provided by it is accurate.

Clotters Anonymous

For general discussion of issues and health conditions surrounding blood clots, including, but not limited to deep vein thrombosis, pulmonary embolism, genetic clotting disorders and arterial clotting conditions such as atrial fibrillation and stroke. The APSFA does not endorse nor is affiliated with this group, we are just sharing it with you as a courtesy. The only support group that APSFA is affiliated with is APS Friends & Support Forum. It is worth noting that not all of the information presented comes from healthcare professionals. The APSFA does not have any control over the content of the this website and cannot confirm that all information provided by it is accurate.

APS Foundation of America, Inc ~ MySpace Fan Page

A fan page & forum run by the founders of the APS Foundation of America, Inc., a non profit organization. This forum is an information source and a friendly support group for people who have Antiphospholipid Antibody Syndrome or for anyone who's lives are touched by it. It is sometimes referred to as APS, APLS, or APLA and is known as Hughes Syndrome or "Sticky Blood" in the UK. APS is associated with recurrent clotting events including premature stroke, repeated miscarriages, phlebitis, venous thrombosis and pulmonary thromboembolism. If this disease touches your life in some way, please feel free to join in our discussions! :) We're glad to have you visit!

APLSUK

A group for people who have Hughes Syndrome / Antiphospholipid Syndrome. The APSFA does not endorse nor is affiliated with this group, we are just sharing it with you as a courtesy. The only support group that APSFA is affiliated with is APS Friends & Support Forum. It is worth noting that not all of the information presented comes from healthcare professionals. The APSFA does not have any control over the content of the this website and cannot confirm that all information provided by it is accurate.

Antiphospholipid Antibody Syndrome

This group is primarily intended for patients, caregivers, and physicians to foster discussions and share experiences related to APS. APLA are antibodies directed against certain phospholipids. Antiphospholipid syndrome is defined as the presence of antiphospholipid antibodies, arterial or venous thrombosis, recurrent spontaneous abortions, and thrombocytopenia. The syndrome can occur within the context of several diseases, mainly autoimmune, or it may be present without any recognizable disease, the so-called primary antiphospholipid syndrome. The APSFA does not endorse nor is affiliated with this group, we are just sharing it with you as a courtesy. The only support group that APSFA is affiliated with is APS Friends & Support Forum. It is worth noting that not all of the information presented comes from healthcare professionals. The APSFA does not have any control over the content of the this website and cannot confirm that all information provided by it is accurate.

AutoImmunity Community

AutoImmunity Community is a message board dedicated to the courageous people battling any of the over 60 autoimmune diseases, and is especially beneficial for those with multiple conditions. Friends and family are always welcome, as well as those who simply suspect they have an autoimmune disease. The APSFA does not endorse nor is affiliated with this group, we are just sharing it with you as a courtesy. The only support group that APSFA is affiliated with is APS Friends & Support Forum. It is worth noting that not all of the information presented comes from healthcare professionals. The APSFA does not have any control over the content of the this website and cannot confirm that all information provided by it is accurate.

APS Foundation of America, Inc Facebook Fan Page

A fan page & forum run by the founders of the APS Foundation of America, Inc., a non profit organization. This forum is an information source and a friendly support group for people who have Antiphospholipid Antibody Syndrome or for anyone who's lives are touched by it. It is sometimes referred to as APS, APLS, or APLA and is known as Hughes Syndrome or "Sticky Blood" in the UK. APS is associated with recurrent clotting events including premature stroke, repeated miscarriages, phlebitis, venous thrombosis and pulmonary thromboembolism. If this disease touches your life in some way, please feel free to join in our discussions! :) We're glad to have you visit!

Blood Clots Under 40

Welcome to the Blood Clot group. This is a group for younger people (or the young at heart!) to get support and advice if they are suffering from any form of blood clot, or if you are on Coumadin or Warfarin. The APSFA does not endorse nor is affiliated with this group, we are just sharing it with you as a courtesy. The only support group that APSFA is affiliated with is APS Friends & Support Forum. It is worth noting that not all of the information presented comes from healthcare professionals. The APSFA does not have any control over the content of the this website and cannot confirm that all information provided by it is accurate.

MySpace APS Group

A group for people who have Hughes Syndrome / Antiphospholipid Syndrome. The APSFA does not endorse nor is affiliated with this group, we are just sharing it with you as a courtesy. The only support group that APSFA is affiliated with is APS Friends & Support Forum. It is worth noting that not all of the information presented comes from healthcare professionals. The APSFA does not have any control over the content of the this website and cannot confirm that all information provided by it is accurate.

*APS Friends & Support Forum

A forum run by Heidi & Tina founders of the APS Foundation of America, Inc., a non profit organization. This forum is an information source and a friendly support group for people who have Antiphospholipid Antibody Syndrome or for anyone who's lives are touched by it. It is sometimes referred to as APS, APLS, or APLA and is known as Hughes Syndrome or "Sticky Blood" in the UK. APS is associated with recurrent clotting events including premature stroke, repeated miscarriages, phlebitis, venous thrombosis and pulmonary thromboembolism. If this disease touches your life in some way, please feel free to join in our discussions! :) We're glad to have you visit!





 

 

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